Living with PCA in Your 20s
Getting diagnosed with young-onset dementia is rare, and even more so in your twenties. Gemma first started showing symptoms around age 28, which made doctors dismiss dementia as a possibility. Most people with PCA aren’t diagnosed until they’re in their 50s or 60s. For someone so young, the condition brought unique challenges. She had to give up her job, limit social activities, and depend more on her family. Everyday things like texting or watching TV became nearly impossible. People often didn’t believe she was sick because she looked healthy on the outside. That disbelief added another layer of stress. Gemma once said she felt like she was “going mad” because no one took her seriously. Living with PCA in your 20s means facing isolation, misunderstanding, and a lot of fear, especially without a timely diagnosis.
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