Nurses and caregivers are typically the people who witness terminally ill patients in their final days the most. Therefore, they have observed the tell-tale signs that a patient will soon pass many times. In an effort to spread awareness of these signs, nurses have begun sharing their advice on social media sites. Surprisingly, one of these signs is an end-of-life surge of energy, otherwise known as terminal lucidity. In this article, we will dive deeper into this sudden energy surge and discover why it occurs in terminally ill patients.
A Nurse’s Warning About the End-of-Life Surge of Energy
Nurse Ruby Gramlow works for Hospice of the Red River Valley in the United States. She recently wrote about her experiences with patients in their final days on the hospice’s blog. [1] In the blog, she shared the importance of being with loved ones in their final days, as well as certain tell-tale signs that their time may be coming to an end. While many signs of approaching death may seem obvious, there is one that often misleads people into thinking that the patient is actually recovering. They seem to be their old selves again, which typically raises false hope in family members, only for the patient to fall seriously ill shortly afterward. This sudden energy surge is short-lived, typically only lasting anywhere from a couple of minutes to several hours and occurring one or two days before they ultimately pass on.
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Does Everybody Experience an End-of-Life Surge of Energy?
As individuals reach their final days, their bodies begin to slow down; they sleep more often, talk less, and consume less food and liquids. However, 4 out of ten people experience a sudden energy surge a few days before they die. This surge of energy may include an increase in appetite, communication, and wakefulness that can last from a few minutes to hours. It is known as terminal lucidity in dementia patients who temporarily regain their personalities and memories just before their passing. [2] Families initially view these signs as positive indications that the person is getting better. However, nurses know too well that the opposite could be true.
More Signs of an End-of-Life Surge
Nurses have noted that people who experience an end-of-life surge of energy will often suddenly sit up in their beds. They may speak clearly for extended periods and be clear in their thoughts and communication. They may wish to engage in specific topics and ask to drink or eat something. However, these signs aren’t always positive; sometimes they may appear agitated or talk nonsensically. Additionally, they may begin to have visions of people who have passed or have conversations with people who aren’t there. They may also express a sense of being between two worlds and speak of experiencing images of light and feelings of peace. [3]
The Causes of Terminal Lucidity
Terminal lucidity is not well understood, and experts are still unsure what neurological mechanisms are involved in this medical phenomenon. Besides individuals who have been diagnosed with dementia, terminal lucidity has also been observed in individuals diagnosed with conditions such as strokes, schizophrenia, and brain tumors. Experts believe that it is vital that more research is done on terminal lucidity, as this would help contribute to a clearer understanding of conditions such as dementia. With a better understanding of the underlying neurobiology, researchers may be able to develop therapies and treatments for these conditions.
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How Long Does an End-of-life Surge Last?
According to one study, around 90% of severe dementia patients who experience terminal lucidity typically pass on within 7 days. Additionally, 41% of those died within 1 to 2 days, and 15% of those studied died within two hours of displaying terminal lucidity. While terminal lucidity often raises false hope in the patient’s loved ones, if better understood, it would enable family members to know that this may be their last chance to spend time with that person. This could also help loved ones begin to emotionally prepare for their impending passing.
The Bottom Line on End-of-Life Surges
Watching a person you love getting weaker every day is heart-wrenchingly difficult. Therefore, any sign of apparent recovery is usually met with a sense of relief. However, signs that seem positive are sometimes indications that the individual may be in their final moments. As we have discovered, one of those signs is a sudden end-of-life surge of energy. In that moment, the usually non-communicative and confused person may seem full of life, clear in thought and word, ready to engage. Yet, often, this is simply a sign that they will soon pass and an opportunity to have one last lucid moment with that person.
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Sources
- “Hospice Nurse Explains the Surge of Energy Often Seen at End of Life.” HRRV. Ruby Gramlow, RN, CHPN
- “A Review of Clinical Signs and Symptoms of Imminent End-of-Life in Individuals With Advanced Illness.” NCBI. June 26, 2023.
- “How to Explain the Surge Before Death to a Patient’s Family.” AMN Health Care. October 4, 2023